The untold story of life with Prader-Willi syndrome - according to the siblings who live it
Peer-Reviewed Publication
Updates every hour. Last Updated: 7-Jan-2026 02:11 ET (7-Jan-2026 07:11 GMT/UTC)
New research reveals reveals the hidden struggles experienced by the brothers and sisters of people with Prader-Willi syndrome.
The rare genetic disorder causes growth and learning challenges and requires lifelong care to prevent serious health issues. It is known for causing constant hunger, which can lead to over-eating and obesity.
But until now, little has been known about how Prader-Willi syndrome impacts families.
The University of East Anglia (UK) team reviewed two decades of research to reveal the emotional challenges faced by siblings – including feelings of stress, loneliness and sadness, where "everyday activities like parties and eating out were impossible".
Cambridge-led study calls for urgent increase in international aid for education to address learning losses and the severe psychological impacts of Gaza war.
Researchers estimate children have lost the equivalent of up to five years of learning since 2020, first due to COVID-19, then war.
Eyewitness accounts gathered for the study also report children’s loss of hope and diminishing faith in values such as peace and human rights.
Two things are clear from a University of Michigan analysis of nearly 200,000 Twitter posts between 2012 and 2022. One, people are really good at identifying peak pollen season. And two, liberal users on Twitter were more likely than conservatives to ascribe shifting pollen seasons over the years to climate change.
Researchers at the University of Basel have developed a tool that measures when people engage in dialog across political divides. The results show that personal factors play a greater role in people’s willingness to engage in dialog than the controversial nature of a topic.